Monday, January 23, 2017

At the Intersection of Hope and Disappointment

After an amazing turn around for me regarding management of my chronic M toward the end of 2016, I was doing the happy dance as well as a few jigs for sure.  I was smiling away as I was able to participate in a good amount of holiday activities with family and friends as well as host a house full of guests for a month.  It was an open door policy with people coming and going, and let me say, all of that activity while wearing me out, really kept my heart joyful.  I was and still am---VERY thankful.  Praise God.  

Now, January has actually been a different story.  It arrived with a big boom of brazen M madness.  Ugh!  What was happening here?  On January 1, I experienced my own version of the new year hangover but not caused by too much happy drink as it were.  No, it was the all too familiar M hangover of a myriad of symptoms which weren't too pretty.  I was at the end of my botox run and was due for another treatment in the second week.  I practically crawled all the way to the office in Hartford.  My sweet and gracious headache specialist took such good care of me and offered hope and encouragement as he always does.  He is balm for my soul when I have close to meltdowns in front of him.  He GETS it.  He FEELS it.  He LIVES with it.  

Returning home and enduring the past few weeks have left me feeling like I have been at the intersection of hope and disappointment.  I came to the red light and have briefly stopped my journey to pause and reflect.  I am a bit worn down but still carry much HOPE within me.   I fully realize that living in the daily-ness of this chronic illness, I need to constantly readjust my sails according to the way the winds blow.  This is a given for survival as well as fully living. Over the years,  I am proud of myself in developing the necessary coping skills.  However, it is all because of God's loving and merciful hands all over me with His constant guidance and protection that give me my daily strength.  I consider my circumstances ALL GRACE.  

So it is time now to start back on a new road to take off to new adventures.  I have a few in mind, and I intend to chase after them..  I intend to pray for bravery and a new found trust in what lies ahead. I intend to look for miracles in my sometimes messy and mundane life.   

"And miracles happen whenever the emptiest places are made into a dwellling place for God," says one of my favorite authors, Ann Voscamp.   

I pray to also allow myself space to hold onto both hope and disappointment on any given day and just be with those feelings.  I pray I will do so without judgement.  Learning to accept the constant ups and downs is one of my big intentions for this year.  

No matter your current circumstances which may find you at your intersection of hope and disappointment, I invite you to just sit with your feelings as well without judgement.  Give them time and attention.  Learn from them and move on...

I bet you will discover wonderous miracles.   



  1. Chronic M and chronic pain are a nightmare. I'm glad that you have good pain mgmt in botox. I have come to the realization that my doctor is correct. I MUST take 600mg ibuprofen twice a day to tolerate the constant arthritis i have in my spine. Here's to a better year! (Debbie Gaschler Pegado)

  2. Praying for you. So not easy. Very sorry to hear about your constant arthritis pain. Sounds debilitating. I am allergic to NSAIDS. Hope your tummy will hold strong! Blessings. May we both take a day at a time. 😊💜🙏

  3. Lisa,
    I rejoice with you over your good period during the holidays, but I am also dejected and disappointed that it came crashing down. I, too, am learning the pain and joy can's not always an either or. Hope and disappointment can coexist too. Even in our darkest days, as long as we have God, there is hope. I love your positive spirit that keeps getting up from the mat and readjusting your sails. You always inspire me. Blessings to you sweet friend.
    Love you,
    Bev xoxo